Invictus Trust has been contacted by a parent whose child suffers from a newly identified mental illness whose symptons include the refusal of a child to eat, talk, walk or talk and not care for themselves and so socially exclude themselves as well. Its called Pervavsive Arousal Withdrawal Syndrome.
So here goes…..
> My name is Scott, my partner and I are currently caring for our daughter at home in Plymouth instead of her being hospitalised in Bristol or London. Anna has been diagnosed (back in February in Bristol) with a rare psychiatric condition called Pervasive Refusal Syndrome (PRS) which has recently been renamed as Pervasive Arousal Withdrawal Syndrome (PAWS).
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To date we are the first parents with a child with this illness to bring them out of the hospital environment and care for them at home where she is recovering. We (my partner and I and other parents who’s children have had or still have the illness) are on a mission to promote awareness, start up a charity or support foundation regarding this illness due to the experiences, negativity we have met along the way and the lack of knowledge within the NHS and literature surrounding PRS/PAWS
If you want to know more please click here or email Scott at firstname.lastname@example.org